American Cancer Society
The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.
Resources
PTEN Hamartoma Tumor Syndrome Resources
Our PTEN Hamartoma Tumor Syndrome experts have created this list of resources to help you keep your child safe and well.
Search Resources
Audience
Coalition for Genetic Fairness
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.