The NPKUA provides information and support to adults and families affected by phenylketonuria, advocates for the reimbursement of medical foods, and invests in targeted and peer-reviewed research. Find helpful resources, educational information, news and events, and how you can take get involved.

MACPAD is a network of individuals and families touched by phenylketonuria and allied disorders. Their website provides educational resources, newborn screening information, support groups, upcoming events, and more.