Coalition for Genetic Fairness
It addresses the growing concern surrounding the misuse of genetic information in health insurance and employment decisions.
Resources
Noonan Syndrome Resources
Our Noonan Syndrome experts have created this list of resources to help you keep your child safe and well.
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National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.