Skip to main content

Patient stories

Neurofibromatosis type 1 Patient Stories

Patient story

Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.

Patient story

Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story

When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.

Patient story

Neurofibromatosis Type 1: Cullen’s Story

Cullen Mitchell has neurofibromatosis, a genetic disorder. His parents, Kelly and Ken, credit the Neurofibromatosis Program at CHOP with helping them manage the complexities of caring for a child with this condition. 

Jump back to top