Our Sickle Cell and Red Cell Disorders Curative Therapy Center (CuRED) experts have created this list of resources to help you keep your child safe and well.
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Scientists at CHOP are pioneering gene therapy so people with these red blood cell disorders can go beyond just managing their chronic disease and live healthy lives.
Want to learn more about gene therapy for blood disorders? These are trusted resources that can give you helpful information and explanations.
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Information on the transplant process at CHOP.