Holden and Elliott’s Story: MECP2 Duplication Syndrome
Holden and his brother, Elliott, share more than a love for cars and trucks. They also both have the same rare genetic neurologic disorder, known as MECP2 duplication syndrome.
Rett Syndrome Clinic Patient Stories
Here at the Rett Syndrome Clinic, you have access to a team of experts with experience managing the care needs of children with this complex condition.
Contact us
Medical Management of Rett Syndrome: Clare’s Story
The knowledge and support they have received from their care team at CHOP has helped Clare’s parents manage her progressive neurodevelopmental disorder.