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Neuromuscular Program Resources

Our Neuromuscular Program experts have created this list of resources to help you keep your child safe and well.

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Cure Spinal Muscular Atrophy

Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.

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Parent Project Muscular Dystrophy

PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births.

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RYR1 Foundation

Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.

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Spinal Muscular Atrophy Foundation

The mission of the SMA Foundation is to accelerate the development of a treatment for spinal muscular atrophy, the number one genetic killer of infants and toddlers.

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United Cerebral Palsy

Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.

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