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Pediatric Neuro-Oncology Program Patient Stories

Your child will be cared for by one of the most accomplished teams of childhood neuro-oncology experts in the world. We provide medical care, emotional counseling and much more. We make sure your child and every member of your family get the highest level of support.

Existing patients or family members
New patients, referrals and second opinions
Patient story

Aaron’s Story: Surgery, Chemotherapy and Stem Cell Transplant for Medulloblastoma

When Aaron was 4, he was suddenly diagnosed with a brain tumor and had to undergo seven months of arduous treatment. His family will never forget the teams in neurosurgery, oncology, nursing and child life — and the Phillies and their South Jersey community — all of whom lifted Aaron up throughout his journey at CHOP.

Patient story

Surgery for a Brain Tumor: Julia's Story

While Julia’s diagnosis of a brain tumor was a shock to her family, the location and type of tumor meant surgery at CHOP was the only treatment she needed.

Patient story

Brain Tumor: Devon’s Story

Devon underwent surgery, chemotherapy and proton therapy for a brain tumor the size of a softball. Within months, she started college and made the Dean’s List.  

Patient story

Neurofibromatosis Type 1: Conor’s story

Conor, 16, and his parents have been traveling to CHOP from South Carolina several times a year since he was an infant for NF1 treatment and clinical trials.

Patient story

Neurofibromatosis 1: Carlee’s Story

Carlee, 4, receives treatment for the optic pathway tumor that caused vision loss. But she’s also gotten extensive psycho-social support.

Patient story

Hypothalamic/Optic Pathway Glioma NF1: Abby’s Story

When Abby was a toddler, she was diagnosed with a disorder that causes tumors and has been receiving treatments at CHOP. Abby is a Patient Ambassador for the 2016 Parkway Run & Walk. Read about her amazing efforts to help other kids undergoing chemotherapy.

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