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Familial Cardiomyopathy Program

Familial Cardiomyopathy Program

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Penn Heart and Vascular Center
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A cardiomyopathy is a disease where the heart muscle becomes enlarged or weakened, preventing it from working well. Two kinds of cardiomyopathy – dilated and hypertrophic – can be passed down in families. If you or your child has been diagnosed with a cardiomyopathy, your family should also be evaluated by a cardiologist.

Our Familial Cardiomyopathy Program combines the expertise and resources of Children's Hospital of Philadelphia (CHOP) and Penn Medicine. Together, we provide screening, evaluation, treatment and genetic assessment for patients with cardiomyopathies. Genetic counseling is also available for your whole family.

CHOP is a Children’s Cardiomyopathy Foundation (CCF) Accredited Center of Care. This program recognizes medical centers in the United States and Canada that provide high-quality cardiac care and specialized disease management to children with cardiomyopathy.

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Meet your team

Our team of geneticists and heart failure experts is among the best in the country at treating cardiomyopathies. We work together to ensure your entire family receives the highest level of care and support.

Our research

We are committed to ongoing research to improve the health and well-being of your child and all children with heart disease.

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Cardiac Center resources

We know that caring for a child with a heart condition can be stressful. To help you find answers to your questions – either before or after visiting the Cardiac Center – we’ve created this list of educational health resources.

Patient stories

Our Stories
A cardiac program enabled brothers to learn they were at risk of a genetic heart condition. Recommended lifestyle changes could save their lives.
Our Stories
It all started when Joy told her mom, Heather, that she was having chest pains. Heather’s family history of hypertrophic cardiomyopathy prompted her to schedule an appointment at the Cardiac Center, where both Joy and her sister, Ryann, were found to have the gene for cardiomyopathy

Events

Cardiology 2025

Wednesday, Feb 19, 2025

Please join us for the 28th Annual Update on Pediatric and Congenital Cardiovascular Disease at Disney’s Yacht & Beach Club Resort.

Instructors ride at the Philly Spin-in

Philly Spin-In

Saturday, Mar 08, 2025

Philly Spin-In is a high-energy, team cycling party on a mission to change and save the lives of children with heart disease. Join the movement and ride for little hearts at CHOP! Join us in person or take the party to your place through our live-streamed session.

Heart Failure and Transplant Program

Learn more about the Heart Failure and Transplant Program at CHOP where our team works together to ensure that every patient receives the most appropriate care for their stage of heart failure.

Cardiac Connection Family Newsletter

Be among the first to know about our latest breakthroughs – big and small. Subscribe to receive Cardiac Connection, a special e-newsletter for families that includes: updates on our research and treatment advances, patient stories, profiles of our clinicians, news about special Cardiac Center events and much more!

Your donation changes lives

Every donation helps us make lifesaving breakthroughs for children everywhere.

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