Gift of Life is the organ and tissue procurement organization (OPO) serving eastern Pennsylvania, southern New Jersey and Delaware.

Provides information for newly diagnosed patients, including kidney disease diagnosis, how kidneys work, coping strategies, as well as diet and exercise and many other topics.

KidsHealth is a great resource for parents, kids, teens and educators to learn about different illnesses and offer supportive resources. It also provides information on other topics such as body health, good hygiene, puberty, etc.

NephHope was started by parents of a transplant child whose focus is to find a treatment/cure for those diagnosed with nephronophthisis and Senior-Loken syndrome through research funding. The foundation also works to increase awareness of the disease and provide support to families.