Skip to main content

Research Studies

Division of Nephrology Research Studies

Find research studies available to children cared for by the Division of Nephrology team.

Contact us
Dialysis unit (main hospital)

Eligible age

Aneurysms in ARPKD

The primary goal of this research study is to learn if patients with autosomal recessive polycystic kidney disease (ARPKD) are at risk for brain aneurysms or cardiovascular abnormalities.Participants in this study will involve patients that have a clinical diagnosis of ARPKD.The study will also involve a comparison group of healthy individuals that have no history of kidney or cardiac conditions.

Phase: Pilot

Actively recruiting: No

Category: Adults, Children, Healthy Controls, MRI/Imaging Studies, One-Time Visit Studies

Conditions: Polycystic Kidney Disease

MRI of ARPKD liver disease

The primary goal of this research study is to see if new types of magnetic resonance imaging (MRI) can be used to measure liver health in children with autosomal recessive polycystic kidney disease (ARPKD) compared to healthy controls. Both children with ARPKD and healthy children, aged 6 years and above can participate.

Phase: Pilot

Actively recruiting: No

Category: Adults, Children, Healthy Controls, MRI/Imaging Studies, One-Time Visit Studies

Conditions: Polycystic Kidney Disease

Physical Activity in Chronic Kidney Disease

The purpose of this study is to identify components of a physical activity intervention that are effective and meaningful to teenagers with chronic kidney disease (CKD).

Participants will be assigned to 1 of the 16 study groups and will be asked to wear a Fitbit. Participants will also be given a step count goal, answer questionnaires, and complete hand grip strength assessments.

Participants may also be asked to have one-on-one meetings with an exercise coach.

All visits may be completed remotely.

Phase: Pilot

Actively recruiting: Yes

Category: Children, Remote (Online / Phone Call Only) Studies

Conditions: Chronic Kidney Disease (CKD)

Jump back to top