Lexi’s Story: Specialized Clinical Care for Beta-Propeller Protein-Associated Neurodegeneration (BPAN)
Genetic testing determined that Lexi had a very rare genetic disorder known as beta-propeller protein-associated neurodegeneration (BPAN).
Our clinic brings together a team of experts to manage the unique needs of these patients. This includes a neurologist, a genetic counselor, occupational and physical therapists, members of our research team, and attending neurologists.
Genetic testing determined that Lexi had a very rare genetic disorder known as beta-propeller protein-associated neurodegeneration (BPAN).