Wyss/Campbell Center for Thoracic Insufficiency Syndrome Patient Stories

Patients who choose our center have access to complete, coordinated care from experts from orthopedics, pulmonology, radiology and genetics. General surgeons, cardiologists, neurosurgeons and others are consulted as needed to provide personalized care.

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Patient story

Severe Spine Curves and Related Complications: Vaia’s Story

When their foster daughter faced insurmountable odds, a Delaware couple turned to CHOP for help with complications from spinal muscular atrophy.

Patient story

Skeletal Dysplasia, Thoracic Insufficiency and Pulmonary Hypoplasia: Klaire’s Story

Skeletal dysplasia and thoracic insufficiency syndrome led Klaire to have severely underdeveloped lungs. Expert treatment at CHOP has helped her thrive.

Patient story

Neuromuscular Scoliosis and MAGEC Growing Rods: Eli’s Story

A decade after Eli’s rare neuromuscular condition was first diagnosed at CHOP, he returned for successful surgical treatment during a global pandemic.

Patient story

Gavin’s Story: Spine Surgery to Correct a Deformity Caused By a Rare Genetic Neuromuscular Disorder

When Gavin was born, doctors didn’t expect him to survive, but thanks to a large team of specialists and a coordinated spine surgery, he’s defying the odds.

Patient story

Thoracic insufficiency and Jeune syndrome: Bubba’s story

When Bubba was born with serious health issues, his family turned to CHOP for life-saving treatment from Jeune syndrome and thoracic insufficiency syndrome.

Patient story

Sophia’s Story: MAGEC Growing Rod Implantation to Treat Neuromuscular Scoliosis

A CHOP occupational therapist's keen observation led to Sophia's neuromuscular scoliosis diagnosis, and supportive treatment to enhance her quality of life.

Patient story

VEPTR Surgery for Spinal Muscular Atrophy: Raymond’s Story

Surgery in a child with spinal muscular atrophy (SMA) has eliminated life-threatening respiratory infections by straightening the spine and separating the ribs.

Patient story

22q deletion syndrome: Amirah's story

Saquon Barkley's shoes tell a story about his niece Amirah, who has a rare genetic condition and is being treated at Children's Hospital of Philadelphia.