Cardiac Critical Care Medicine Patient Stories

Our specially trained physicians and cardiac critical care experts offer an unparalleled level of expertise to patients with complex congenital heart disease and their families.

Outpatient appointments
Second opinions, referrals and information about our services
Patient story

Long QT Syndrome: Samad’s Story
After Samad was diagnosed with a rare genetic heart disorder, his family underwent genetic testing and discovered they too had the disorder.
Patient story

Hypoplastic Left Heart Syndrome: Siena's Story
Born with multiple ventricular septal heart defects, Siena overcame many challenges during her first year. Now 14 months old, she's back home and reaching new milestones.
Patient story

Giant Cell Myocarditis: Jackson’s Story
Two years ago, Jackson was on life support after being diagnosed with a rare, life-threatening heart disorder. Now 15, he’s an active teen looking forward to the future.
Patient story

Cardiac Tumor and Stroke: John's Story
When John, 15, passed out at football practice, CHOP doctors discovered he had a stroke and a rare cardiac tumor. After treatment, John is doing well.
Patient story

Tetralogy of Fallot (TOF): Alissa’s Story
When Alissa was a baby, she underwent heart surgery at Children’s Hospital of Philadelphia to treat tetralogy of Fallot (TOF), a congenital heart defect.