Belt-positioning Booster Seats
This educational fact sheet addresses questions about the safe use of belt-positioning booster seats for children.
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Spina Bifida Program Transition to Adult Care
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Get to Know Us: Virtual Introduction to CHOP Primary Care, Newtown
Searching for a pediatrician? Sign up for a virtual session with one of our providers and get to know our practice.
Frequently Asked Questions about Congenital Diaphragmatic Hernia: Helping You Make Choices About Your Child's Care
More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.
Travel Resources for HI Patients
Learn about medical travel assistance for your child and see what’s required.
Undiagnosed Diseases Network (UDN)
Research program funded by the National Institute of Health (NIH). Some patients seen in the CHOP UDP are eligible and will also be asked if they want to enroll in the research side. You can visit their website to learn more about the research they conduct. Adult patients may be seen by the UDN site at Penn.
National Organization for Rare Disorders (NORD)
An educational link for organizations and individuals concerned with a rare disorder. They monitor legislation, research diseases, award grants and network individuals.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Sibshops at CHOP
Sibshops is a fun and rewarding program for brothers and sisters of children with special health or developmental needs to gain peer support and education through facilitator led discussions, activities and games.
Orphan Disease Program
Visit this website for details on orphan (rare) diseases and treatments. Additional information like drug development, orphan product designations, and how the FDA supports rare disease research. You can also find a list of drugs approved for rare conditions and ongoing clinical trials.