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United Leukodystrophy Foundation (ULF)

ULF is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.

Health resource

Kathy's Hats: A Story of Hope

This is a story of a 9-year-old who has always enjoyed wearing hats. But when she loses her hair from cancer treatments, suddenly hats aren't so much fun anymore.

Health resource

To the Edge and Back

To the Edge and Back is a book by Chris Klug about his journey from receiving a liver transplant to becoming an Olympic snowboarder and the first Olympic athlete to win a medal after an organ transplant.

Health resource

American Migraine Foundation

The American Migraine Foundation provides information about migraine symptoms and triggers in children, how to help your child manage migraines, and strategies for coping with migraines at school and in other social situations.

Health resource

Canadian Liver Foundation

This foundation is devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.

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Family Assistance Grant

Mito Action offers a grant through Marcel’s Way Family Fund to help families cover unpaid medically related expenses. Click here to apply.

Health resource

Managing your Child’s Chronic Pain

This guide for parents of children and adolescents offers practical strategies and tools for management of chronic pain with the goal of kids fully participating in school, sports, social life and family life. By Tonya Palermo, PhD, and Emily Law, PhD.

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