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Nephrology Summer Camps

Registration is now open for summer 2025. Camps fill up quickly so submit your application today!

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European Leukodystrophy Association

Provides assistance and support to families affected by leukodystrophy, funds research projects, raises public awareness, and collaborates with international organizations to pool resources to develop research.

Health resource

The FPIES Foundation

The FPIES Foundation is dedicated to overcoming the challenges of food-protein induced enterocolitis syndrome by offering tools for education, support and advocacy.

Health resource

NINDS Rett Syndrome Information

The mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease for all people.

Health resource

United Leukodystrophy Foundation (ULF)

ULF is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.

Health resource

Kathy's Hats: A Story of Hope

This is a story of a 9-year-old who has always enjoyed wearing hats. But when she loses her hair from cancer treatments, suddenly hats aren't so much fun anymore.

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