Mission Massimo Foundation
The Mission Massimo Foundation aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood Leukodystrophies and to translate these findings into clinical treatments.
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Elise’s Corner
Creating a support network for individuals, families, and friends affected by AxD.
MSD Action Foundation
Working towards a cure for Multiple Sulfatase Deficiency
Foundation to Fight H-ABC
Provides information about H-ABC to spread awareness about this degenerative disease, and raises funds for research on gene therapy treatments that could stop the degenerative effects of H-ABC.
Mission Massimo Foundation
It aims to exponentially accelerate the discovery of novel genetic variations responsible for childhood leukodystrophies and to translate these findings into clinical treatments.
United MSD Foundation
Join the team committed to finding a cure for MSD
H-ABC Foundation
Raising funds and awareness to help find a cure for H-ABC.
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of the National Institute of Neurological Disorders and Stroke (NINDS) is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
The Calliope Joy Foundation
Their fundraising efforts helped establish the nation's first Leukodystrophy Center of Excellence at CHOP. Learn about their cupcake challenge and how to get involved, and find information about current and upcoming clinical trials.
Chloe’s Fight Rare Disease Foundation
Chloe’s Fight Rare Disease Foundation is dedicated to supporting the development of cures and treatments for childhood lysosomal storage diseases (LSDs) by funding research, advocating policy for patients, and raising awareness.