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Spina Bifida Surgery During Pregnancy: Illustrations
See step-by-step illustrations of the stages involved in fetal repair of spina bifida.
Aicardi-Goutières Syndrome Association Americas (AGSAA)
AGSAA provides information about Aicardi-Goutières syndrome, resources for families and physicians, support groups, research information and more.
ALD Connect
With its mission to improve health outcomes for patients with X-linked adrenoleukodystrophy, ALD Connect provides education and support information for families, research information, ways to get involved, and more.
Canavan Foundation
Canavan Foundation is a not-for-profit organization dedicated to educating at-risk populations about Canavan disease and other Jewish genetic diseases and supporting research looking into a cure.
Cure GM1 Foundation
The Foundation's mission is to fund research for the benefit of all those who suffer from GM1 gangliosidosis. Their website provides information about GM1, clinical trials, videos, patient stories, ways to get involved and more.
National Tay-Sachs and Allied Diseases Association (NTSAD)
NTSAD is one of the oldest patient advocacy groups in the country, focused on funding research, providing support services to families and individuals worldwide, and raising awareness to prevent disease.
The Yaya Foundation for 4H Leukodystrophy
The Yaya Foundation focuses on finding a cure for 4H leukodystrophy by supporting research, raising awareness, improving education and connecting families.
Asthma Tips for Parents
Parents can help their teens better manage their asthma by following tips provided by experts at The Children's Hospital of Philadelphia.
Non-invasive Ventilation for Infants and Children
Find information on how to prepare your child to use the CPAP machine through a gradual desensitization process.