Leigh Syndrome Parent Network: Facebook Support Group
This page is dedicated solely to the parents of children who have been diagnosed with Leigh's Syndrome - a mitochondrial disease.
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International Mito Patients (IMP)
International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.
The Lily Foundation
The Lily Foundation is the UK's leading mitochondrial disease charity and the largest charitable funder of mitochondrial research in Europe.
CureARS
CureARS Nonprofit is funding research for mt-aars disorders, mitochondrial ARS genes & providing support to families affected by the Mito ARS genes.
Leber’s Hereditary Optic Neuropathy (LHON)
This site was created by a family affected by Leber’s Hereditary Optic Neuropathy (LHON). By sharing what we learned as we struggled to cope with LHON, and what we've learned over the years since it first happened, we hope to help make the adjustment process smoother for others.
Mitochondrial Medicine Society (MMS)
Founded in 1998 by doctors Richard Haas and Robert Naviaux, the MMS represents an international group of physicians, researchers and clinicians working towards advancing education, research and global collaboration in clinical mitochondrial medicine.
mitoSHARE
mitoSHARE is a worldwide patient-populated registry initiative stewarded by UMDF. The goal of the registry is to advance scientific research using data gathered from patients and families affected by mitochondrial disease.
Energy Therapy
This resource from Children’s Hospital of Philadelphia provides information about energy therapy, its benefits and what to expect during and after treatment.
Terapia de energía
Las terapias de energía son tratamientos de toques terapéuticos en las que los proveedores utilizan las manos para apoyar la curación y el bienestar al equilibrar el sistema energético de su hijo.
Street Safety for Your Special Needs Child
Children with disabilities are two to five times more likely to be killed in pedestrian accidents than their typically developing peers. Find safety tips.