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This pathway is to be used for infants from birth to 1 year of age, admitted to an intensive care unit, with concern for lymphatic flow disorders without history of surgical/traumatic chylothorax, congenital heart disease, or isolated lymphatic mass.
Youth Heart Watch works with schools to help them obtain and maintain automated external defibrillators (AED).
The impact that a child’s death leaves on their sibling is immeasurable, yet there are ways to help. Acknowledging the sibling’s feelings, helping them express their emotions appropriately and navigating what individualized resources are available can positively impact how each child copes with death.
Hemophilia is a genetic disease that prevents blood from clotting properly leading to prolonged internal and external bleeding. Read more hemophilia and the existing treatments.
View interactive webinars, educational resources and the latest news about hemophilia.
MitoAction’s mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy and clinical research initiatives.
People Against Leigh Syndrome, (PALS), was formed in 2013 after William Martin, son of Neil and Lori Martin, was diagnosed with Leigh syndrome, a genetic neurometabolic disorder that can cause deterioration of the central nervous system, including the brain, spinal cord, and optic nerve.
The Champ Foundation supports research toward better treatment and a cure for single large-scale mitochondrial deletion syndromes (SLSMDS), like Pearson syndrome.
This page is dedicated solely to the parents of children who have been diagnosed with Leigh's Syndrome - a mitochondrial disease.
International Mito Patients is a network of national patient organizations involved in mito. The national patient organizations support and advocate for patients, fund research, increase awareness and improve education in their country.