Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
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Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.
A guardian is someone that is legally authorized to act on behalf of a minor or an incapacitated adult to assure that the person’s health, safety, and welfare needs are met and that their rights are protected. New Jersey provides helpful information on obtaining guardianship and a guardianship packet.
Centers for Independent Living (CILs) are community-based, consumer-driven organizations that provide information and referral, peer counseling, skills training, advocacy and a variety of services based on individual needs. Find CIL services in New Jersey.