How to choose a plastic and reconstructive surgery program for craniofacial conditions: A guide for parents
Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.
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Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.
The Virtual Epilepsy Education Day is a special event for parents and caregivers of children diagnosed with epilepsy, hosted by the Pediatric Epilepsy Program at Children’s Hospital of Philadelphia. Learn about neurogenetics, seizure first aid and safety, seizure detection devices, emotional health, and support within your community.
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.
Children’s Hospital of Philadelphia’s Ketogenic Diet Teaching Kitchen (Keto Kitchen) is a teaching kitchen where parents and caregivers can take cooking classes and learn to prepare the foods their child will need when following a dietary treatment for epilepsy and neurological disorders.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.
The website provides information about epilepsy, news and special events, and programs and resources for patient and families.
A private, non-profit service organization providing public education and supportive services to individuals and families affected by epilepsy/seizure disorders.
Is a non-profit charitable agency dedicated to helping improve the quality of life for people affected by epilepsy and their loved ones.