How to choose a plastic and reconstructive surgery program for craniofacial conditions: A guide for parents
Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.
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Face to Face Portrait Project
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Philly Phaces
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.
Transplant Process at CHOP
Information on the transplant process at CHOP.
Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
March of Dimes
March of Dimes is an international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.
Gene Therapy Resources for Blood Disorders
Want to learn more about gene therapy for blood disorders? These are trusted resources that can give you helpful information and explanations.
Gene Therapy for Sickle Cell Disease and Thalassemia
Scientists at CHOP are pioneering gene therapy so people with these red blood cell disorders can go beyond just managing their chronic disease and live healthy lives.