How to choose a plastic and reconstructive surgery program for craniofacial conditions: A guide for parents
Important questions to ask potential providers when looking for a program to treat your child’s craniofacial difference.
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Understanding insurance and why staying insured is so important
Children's Hospital of Philadelphia (CHOP) offers information to teenagers and young adults about understanding insurance.
Face to Face Portrait Project
The Face to Face Portrait Project creates portraits of children and adolescents with craniofacial conditions to help them see themselves in a different light.
Philly Phaces
Philly Phaces provides peer support, advocacy, and resources to help Philadelphia-area children facing appearance differences from craniofacial abnormalities and cleft lip and palate.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Spina Bifida Program Transition to Adult Care
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Spina Bifida Program Advisory Board
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
Pennsylvania Health Law Project: Medical Assistance
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
PA Independent Enrollment Broker (IEB)
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.