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Caring for your child

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Be the Match Peer Connect Program

The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.

Health resource

BMT Infonet Caring Connections Program

Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.

Health resource

Got Transition

Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.

Health resource

Image Gently

Image Gently is an initiative of the Alliance for Radiation Safety in Pediatric Imaging that offers educational materials and resources for informed parents.

Health resource

Disability Rights PA Transition Resources

Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.

Health resource

Spina Bifida Program Advisory Board

The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families. 

Health resource

Pennsylvania Health Law Project: Medical Assistance

The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more. 

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