Cancer Hope Network
Cancer Hope Network provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Caring for your child
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Showing 1 - 10 of 28 results
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Role of ECMO in Treating Babies with Congenital Diaphragmatic Hernia
Babies born with congenital diaphragmatic hernia (CDH) may go on ECMO if they aren’t responding well to other efforts to stabilize them. Find answers to common questions parents have about this potential treatment.
Frequently Asked Questions about Congenital Diaphragmatic Hernia: Helping You Make Choices About Your Child's Care
More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.
Fertility Options for Young Female Cancer Patients
The Children's Hospital of Philadelphia has one of the best fertility preservation programs in pediatric oncology, offering choices for teenagers and young women as well as girls who have not yet experienced puberty.
Spina Bifida Program Transition to Adult Care
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Spina Bifida Program Advisory Board
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
Pennsylvania Health Law Project: Medical Assistance
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
PA Independent Enrollment Broker (IEB)
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.