Congenital disorders of glycosylation (CDG) forms
Learn more about the different forms of Congenital Disorders of Glycosylation (CDG).
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Transition to Adulthood with a Chronic Illness: Growing up
When you are a young adult with a chronic health condition, you have many extra responsibilities to manage. Decisions about drinking, dating and other aspects of adulthood are even more difficult.
Transition to Adulthood with a Chronic Illness: Health Insurance
No one likes to think about health insurance. But if you are a teenager with a chronic condition, you must think about health insurance and make sure you don't lose it.
Voiding Calendars
A voiding calendar can help keep track of your child’s bathroom and voiding habits. Download our calendar for kids, and one for teens to keep track of their own habits.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Choosing a Primary Care Provider: 5 Tips to Help You Find the Right One
A primary care provider is an important health professional who sees you for most of your medical needs, routine screenings, wellness visits, and non-emergency illnesses. Finding the right one is an important step in taking care of your health.
Primary Care Finder from the City of Philadelphia
Use this primary care finder to find free and low-cost medical care in Philadelphia.
Access College Initiative from DO-IT: The Student Lounge
If you are a high school or a college student with a disability, you have come to the right place! The Student Lounge has resources designed to help you learn more about how to prepare for and be successful in postsecondary education and careers.
PACER's National Parent Center on Transition and Employment: Postsecondary Education
Transitioning can be an overwhelming process. Pacer’s National Parent Center on Transition and Employment offers resources on the transition process for middle school and high school, postsecondary education, employment, benefit programs, and independent and community living.
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.