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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
Find a list of colleges and universities in the Pennsylvania, New Jersey and Delaware that offer classes in American Sign Language.
These resources explain what lithium batteries are, how common they are in household items, how dangerous they can be if swallowed, and what symptoms your child may display if he swallows one.
CHOP airway surgeons describe three surgeries used to reconstruct the pediatric airway: laryngotracheal reconstruction (LTR), cricotracheal resection (CTR), and slide tracheoplasty.
Provides downloadable resources and videos to help parents track their children's development and act early if they have any concerns.
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
In Freeing Your Child From Anxiety, a childhood anxiety disorder specialist examines all manifestations of childhood fears, including social anxiety, Tourette’s Syndrome, hair-pulling, and Obsessive Compulsive Disorder, and guides you through a proven program to help your child back to emotional safety.
In Growing Up Brave, Dr. Pincus helps parents identify and understand anxiety in their children, outlines effective and convenient parenting techniques for reducing anxiety, and shows parents how to promote bravery for long-term confidence.
One of the world’s foremost experts on anxiety in children provides a guide to recognizing and alleviating a range of debilitating fears.
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.