American Partnership for Eosinophilic Disorders
The APFED is a non-profit organization for adults, children and families living with eosinophilic gastrointestinal disorders.
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Showing 1 - 10 of 32 results
RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
Cure Spinal Muscular Atrophy
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
FAQs about 504 Plans
This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.
Applying for Pennsylvania Medical Assistance (PAMA)
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Peanut Patch Treatment for Toddlers: Your Questions Answered
Terri Brown-Whitehorn, MD, answers questions about new clinical study proving daily use of a “peanut patch” for a year helped desensitize two-thirds of peanut-allergic toddlers.
Transitioning Your Arthritis and Rheumatic Disease Care to an Adult Provider
Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.
Camp JRA
Sponsored by the Arthritis Foundation, Camp JRA offers a place for children with arthritis to have fun, make new friends and learn how to take control of their disease.
Otrexup Self-administration Video
Provides information and step-by-step instructions on how to self-administer Otrexup™ (methotrexate) injection for subcutaneous use for the treatment of rheumatoid arthritis.
International Food Protein-Induced Enterocolitis Syndrome Association
FPIES provides education, support and advocacy for individuals with food protein-induced enterocolitis syndrome (FPIES) and their families.