RYR1 Foundation
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
Showing 1 - 10 of 23 results
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
This resource from Children’s Hospital of Philadelphia provides information on 504 plans, which ensure reasonable accommodations for children who qualify.
This resource from Children’s Hospital of Philadelphia describes how to apply for PA medical assistance as secondary insurance.
Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.
Sponsored by the Arthritis Foundation, Camp JRA offers a place for children with arthritis to have fun, make new friends and learn how to take control of their disease.
Provides information and step-by-step instructions on how to self-administer Otrexup™ (methotrexate) injection for subcutaneous use for the treatment of rheumatoid arthritis.
Find expert tips and advice on how to keep children safe from sexual assault/abuse, help survivors of sexual assault/abuse, and more.
Find definitions of sexual assaults, sexual abuse, sexual exploitation, and rape.
Find suggested responses to common reactions children might experience after a sexual abuse/assault.