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The American Syringomyelia & Chiari Alliance Project Inc. (ASAP) is a nonprofit organization dedicated to improving the lives of individuals affected by Chiari malformation, syringomyelia, and related disorders. They provide support, education and information for patients and their families, fund research, and work to increase awareness and understanding of these conditions.
Find information about RYR-1 muscle disease for patient and families and learn about the RYR-1 International Family Conference and ways you can get involved.
Cure Spinal Muscular Atrophy funds and directs the leading spinal muscular atrophy research programs to develop a treatment and cure for the disease.
A voiding calendar can help keep track of your child’s bathroom and voiding habits. Download our calendar for kids, and one for teens to keep track of their own habits.
Educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities.
Find advice and resources for managing bedwetting in children from pediatric urology specialists at Children's Hospital of Philadelphia.
PPMD provides information about Duchenne muscular dystrophy, the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births.
The mission of the SMA Foundation is to accelerate the development of a treatment for spinal muscular atrophy, the number one genetic killer of infants and toddlers.
Find information about myasthenia gravis (MG), including living with MG, community support, research and how you can help.