National Cancer Institute — Wilms Tumor and Other Childhood Kidney Tumors
The National Cancer Institute is the nation's trusted source of information about Wilms tumor and other types of childhood cancers.
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The Genetic Information Nondiscrimination Act (GINA)
GINA is a federal law designed to protect people in the United States from genetic discrimination in health insurance and employment.
GeneReviews™
GeneReviews are expert-authored, peer-reviewed disease descriptions focused on the diagnosis, management and genetic counseling for people with inherited conditions.
How Vision Can Support or Delay Learning in a Child with Down Syndrome: Part 2
Vision refers to more than an ability to see things close or far away. The eyes’ ability to move and work together as a team are important aspects of vision.
The Lupus Foundation of America
Get answers about lupus, its diagnosis and treatment options. Find help and resources, read news and stories, and learn about the Lupus Foundation of America national patient advocacy and research program.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Down Syndrome Checklist: Birth
Learning that your child has Down syndrome can be overwhelming. This checklist was developed to help guide you through the first steps.
Transitioning Your Arthritis and Rheumatic Disease Care to an Adult Provider
Adolescents with chronic illnesses, including arthritis, need guidance and a plan for the future in order to safely transition to an adult provider.
Beckwith-Wiedemann Syndrome Support Group – U.K.
Beckwith-Wiedemann Syndrome Support Group – U.K. supports families of children with Beckwith-Wiedemann syndrome, promotes public and professional awareness of BWS, and supports and encourages research.
Genetics Home Reference — Beckwith-Wiedemann syndrome
The Genetics Home Reference is an online guide from the National Institutes of Health designed to help you understand genetic conditions. It includes a handbook, glossary and resources.