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When you are a young adult with a chronic health condition, you have many extra responsibilities to manage. Decisions about drinking, dating and other aspects of adulthood are even more difficult.
No one likes to think about health insurance. But if you are a teenager with a chronic condition, you must think about health insurance and make sure you don't lose it.
Information on the transplant process at CHOP.
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Want to learn more about gene therapy for blood disorders? These are trusted resources that can give you helpful information and explanations.
Scientists at CHOP are pioneering gene therapy so people with these red blood cell disorders can go beyond just managing their chronic disease and live healthy lives.
Cure HHT has consistently been at the center of the national and global effort to advocate for patients and families, raise awareness of HHT, guide and fund critical research, create lasting collaborations and encourage scientists to work on new treatments.
From the Annals of Internal Medicine, the Second International Guidelines for the Diagnosis and Management of Hereditary Hemorrhagic Telangiectasia.