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We know how hard it is to care for a child with complex medical needs. We are here to support you and ease these difficulties any way we can. This guide was created as a resource for you and your family to navigate your care and partnership with our team at the Leukodystrophy Center.
SAMHSA’s National Helpline provides round-the-clock free, confidential treatment referral and information services (in English and Spanish) for individuals and families facing mental health and/or substance use disorders.
Provides information about the signs and symptoms of anorexia nervosa and bulimia and the importance of early identification and treatment.
Babies born with congenital diaphragmatic hernia (CDH) may go on ECMO if they aren’t responding well to other efforts to stabilize them. Find answers to common questions parents have about this potential treatment.
More information about congenital diaphragmatic hernia (CDH) to help make choices about your child’s care and choose a CDH treatment center that is right for you.
The Center for Injury Research and Prevention (CIRP) at CHOP provides an evidence-based website called teendriversource.research.chop.edu for teens, parents, policymakers and those that support and educate them. Get information on best practices for learning to drive, Graduated Driver Licensing laws, and guiding teens during the risky early years of independent driving. Access free practice driving lessons, videos, fact sheets, and more.
iknowUshould2, launched by CHOP, is a campaign for teens that aims to improve knowledge about and increase testing for sexually transmitted infections and human immunodeficiency virus (HIV).
These webinar videos from the Leukodystrophy Symposium provide up to date information on the best diagnostic and disease management practices, with an emphasis on how to provide patient and disease centered care during the COVID-19 health emergency.
AACAP's Facts for Families provide concise and up-to-date information on issues that affect children, teenagers and their families.
Provides information about mental health and support resources for families, teens and young adults. It has affiliates in every state and in many local communities.