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American Cancer Society

The American Cancer Society website offers helpful information about childhood cancer diagnosis, treatment, prognosis and resources.

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Neurofibromatosis Family Association (NFFA)

NFFA is a parent volunteer group that exists to support families and individuals at CHOP who are affected by  neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) or schwannomatosis.

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Guidelines for the Management of Adults with CHD

The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).

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Guidelines for the Management of Adults with CHD - Spanish

The American College of Cardiology and the American Heart Association made rules (guidelines) for taking care of adult patients with congenital heart defects (CHD). These guidelines give doctors the most important information for caring for adults with congenital heart disease (CHD).

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Adult Congenital Heart Fact Sheet

Check out this fact sheet about congenital heart disease (CHD), a problem with the heart’s structure that is present at birth.

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Health Insurance and ACHD

Adults with congenital heart disease (CHD) should choose an insurance plan that will provide the coverage that they need for their special care. See this Q&A from the Adult Congenital Heart Association.

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Exercise and ACHD

See this Q&A about exercise and ACHD from the Adult Congenital Heart Association.

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