American Partnership for Eosinophilic Disorders
The APFED is a non-profit organization for adults, children and families living with eosinophilic gastrointestinal disorders.
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Showing 1 - 10 of 30 results
Anxiety with Food Allergies
Megan Lewis, MSN, RN, CRNP, nurse practitioner and program manager, Food Allergy Center at Children’s Hospital of Philadelphia, and James (JP) Senter, MD, a third-year resident at CHOP, review: the extent to which food allergies affect quality of life for children and families.
Peanut Patch Treatment for Toddlers: Your Questions Answered
Terri Brown-Whitehorn, MD, answers questions about new clinical study proving daily use of a “peanut patch” for a year helped desensitize two-thirds of peanut-allergic toddlers.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Spina Bifida Program Transition to Adult Care
Learn how we support children seen in the Spina Bifida Program as they grow to prepare for a smooth transition to adult healthcare.
Disability Rights PA Transition Resources
Disability Rights Pennsylvania (DRP) offers a self-advocacy guide for transition to adulthood, with information to help you in advocating for yourself or someone else with a disability.
Spina Bifida Program Advisory Board
The Spina Bifida Program Advisory Board collaborates with the clinical team to advocate for patients and empower and educate families.
Pennsylvania Health Law Project: Medical Assistance
The Pennsylvania Health Law Project (PHLP) is a non-profit legal services organization that represents Pennsylvanians who need help getting or keeping Medicaid (Medical Assistance or MA). Their "self help" resource library includes information about medical assistance for workers with disabilities, Medicare/Medicaid dual eligibility, application process for OLTL waivers, and more.
PA Independent Enrollment Broker (IEB)
The PA IEB provides enrollment support for Pennsylvania’s Home and Community Based (HCBS) waiver programs.
Guardianship in New Jersey
A guardian is someone that is legally authorized to act on behalf of a minor or an incapacitated adult to assure that the person’s health, safety, and welfare needs are met and that their rights are protected. New Jersey provides helpful information on obtaining guardianship and a guardianship packet.