National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
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National Urea Cycle Disorders Foundation
The National Urea Cycle Disorders Foundation provides information and resources to those affected by urea cycle disorder (UCD).
Organic Acidemia Association
The Organic Acidemia Association funds research and provides support for individuals affected by organic acidemia metabolic disorders.
United Mitochondrial Disease Foundation
The United Mitochondrial Disease Foundation promotes research for and education about mitochondrial disorders to those affected by them.
Metabolic Support UK
The Metabolic Support UK organization funds research and provides information to families affected by metabolic disorders.
NJ Statewide Parent Advocacy Network
The website offers families and professionals information, resources, support and advocacy assistance.
Cure Mito Foundation
The Cure Mito Foundation's mission is to unite the global Leigh syndrome community to accelerate patient-centered research, treatments, and cures.
Cleft Advocate
The Cleft Advocate educates and inspires families whose lives are touched by cleft lip and/or palate or other craniofacial anomalies.
AAOS — Your Orthopaedic Connection
OrthoInfo is a trusted source of information from AAOS about musculoskeletal conditions and injuries — how they are treated, as well as how they can be prevented.
How Much Phe?
"A comprehensive diet-management system for PKU with phe/pro/exchange and calorie values for more than 7,000 foods. Easily record, chart, and export your intake and blood levels."