Patient Resources and Contacts
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Showing 1 - 7 of 7 results
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) provides advocacy, education and other services to improve the lives of all people affected by rare diseases.
Introducción a la Genética
Introducción a la Genética
Cleft Advocate
The Cleft Advocate educates and inspires families whose lives are touched by cleft lip and/or palate or other craniofacial anomalies.
AAOS — Your Orthopaedic Connection
OrthoInfo is a trusted source of information from AAOS about musculoskeletal conditions and injuries — how they are treated, as well as how they can be prevented.
Understanding Genomics and Genetic Testing
This educational module from Children's Hospital of Philadelphia (CHOP) is designed to help you understand the basics of genomics and how changes in our genetic makeup can lead to various medical conditions.
Transition to Adulthood
The Comprehensive Bone Marrow Failure Center (CBMFC) at the Children’s Hospital of Philadelphia (CHOP) is committed to providing comprehensive care for children, adolescents, and young adults with bone marrow failure disorders. Our goal is for our patients to become confident and comfortable in their own health care, so that they and their families are prepared for a smooth and successful transition to adult life when the time comes.