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New Jersey's Alliance Center for Independence (ACI) provides services (career planning, community based services, community inclusion, prevocational training, supportive employment, and more) through the Division of Developmental Disabilities (DDD). These services are provided through DDD referral only.
A 501(c)(3) charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their parents’ commercial health insurance plan. Families can receive up to $5,000 annually per child ($10,000 lifetime maximum per child). **See your Social Worker for assistance with application**
Global Genes is committed to providing information, resources and connections to all communities affected by rare disease.
Includes information on the anti-bullying initiative, “Don’t Laugh at Me,” as well as professional development workshops and school assembly programs.
Support research and advocacy, networking among families, provide factual information and resources.
Lipedema Foundation focuses on research for cause & effective treatment of lipedema.
A 501c3 not-for-profit organization dedicated to improving the lives of Proteus patients by funding AKT1 research. We focus on providing family support in the form of education and networking individuals living with Proteus syndrome with other families and medical professionals.
Education, financial assistance, research and awareness.
Section 504 of the Rehabilitation Act of 1973 ensures that individuals with disabilities are given protection from discrimination. Often at school, this means that a child is allowed reasonable accommodations as determined by a 504 Committee.
In this video series, Ciarlo shows how individuals with spina bifida can build independence. Topics include: navigating stairs, sitting, self-care, moving with crutches, and exercise.