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The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
A magazine for parents of children with special needs.
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.
Vascular Malformation advocacy and support. Includes factual information and resources.
Promotes research that will identify effective treatments and ultimately a cure for these diseases. Provides support to patients and their families; education and hope to those affected by these rare lymphatic malformations. **Website also has information on the International LGDA Registry for Lymphatic Malformations**