American Partnership for Eosinophilic Disorders
The APFED is a non-profit organization for adults, children and families living with eosinophilic gastrointestinal disorders.
Caring for your child
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Supplemental Security Income (SSI)
The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Peanut Patch Treatment for Toddlers: Your Questions Answered
Terri Brown-Whitehorn, MD, answers questions about new clinical study proving daily use of a “peanut patch” for a year helped desensitize two-thirds of peanut-allergic toddlers.
Got Transition
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Birthmarks.com
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
CLOVES Syndrome Community
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
Exceptional Parent Magazine
A magazine for parents of children with special needs.
Hereditary Hemorrhagic Telangiectasia (HHT) Foundation
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
Infantile Hemangioma
A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.