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The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Information on the transplant process at CHOP.
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
A magazine for parents of children with special needs.