American Partnership for Eosinophilic Disorders
The APFED is a non-profit organization for adults, children and families living with eosinophilic gastrointestinal disorders.
Caring for your child
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Showing 1 - 10 of 46 results
Supplemental Security Income (SSI)
The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Anxiety with Food Allergies
Megan Lewis, MSN, RN, CRNP, nurse practitioner and program manager, Food Allergy Center at Children’s Hospital of Philadelphia, and James (JP) Senter, MD, a third-year resident at CHOP, review: the extent to which food allergies affect quality of life for children and families.
Peanut Patch Treatment for Toddlers: Your Questions Answered
Terri Brown-Whitehorn, MD, answers questions about new clinical study proving daily use of a “peanut patch” for a year helped desensitize two-thirds of peanut-allergic toddlers.
Transplant Process at CHOP
Information on the transplant process at CHOP.
Be the Match Peer Connect Program
The Peer mentors are trained volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. In order to be matched, you fill out the online form that you can get to from the link above and answer questions about what you are looking for in a peer connection, your child’s diagnosis, where you are in the transplant process.
BMT Infonet Caring Connections Program
Mentors are volunteers who have either undergone transplant or are caregivers for someone who has undergone transplant. Their mentors who are caregivers for pediatric patients are limited. To connect, complete an online form at the bottom of the page linked above with demographic information about yourself and the patient.
Sickle Cell Transplant Advocacy & Research Alliance
STAR Consortium dedicated to To greatly increase awareness, accessibility & success of Bone Marrow Transplant (BMT) and Gene Therapy as cures for Sickle Cell Disease.
Birthmarks.com
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.