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The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
A resource for families.
Watch the video presentations given by experts from Children's Hospital of Philadelphia (CHOP) at our IBD Education Day 2023.
Got Transition® is a federally funded center that offers many resources for young adults and their families to support them in their journey as they transition from pediatric to adult healthcare. Access resources here.
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
A magazine for parents of children with special needs.
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
A disease awareness web site created by Pierre Fabre Pharmaceuticals Inc.