Play and Recreation During Hospitalization
Play and recreation can be therapeutic by giving children the opportunity to explore, express and process their healthcare experiences in a safe, non-threatening environment.
Caring for your child
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Supplemental Security Income (SSI)
The SSI program makes payments to those age 65 or older, blind, or disabled persons (including children) who have limited income and resources. Social Security has a strict definition of disability for children (condition must seriously limit his or her activities; and must have lasted, or be expected to last, at least 1 year or result in death).
Heart Facts For You
Spreading the word about CHD is vital to educating the public as a step towards improving care and fueling scientific research.
IBD Education Day 2024 Video
Review the video presentations given by experts from the Children's Hospital of Philadelphia (CHOP) at our IBD Education Day.
Please join us next year, on 2/23/2025 for the 34th annual Inflammatory Bowel Disease Education Day.
Topics included:
• current and future therapies for IBD
• diet and nutrition guidance
• ongoing IBD research
• unique challenges related to VEO-IBD
Birthmarks.com
Information, recommendations, active interchange, and lots of resources about port wine stains and hemangiomas. Provides a free private newsgroup or subscription to an online newsletter.
CarePages
A free service that allows families to easily create web pages during a health challenge to keep friends and family informed.
CLOVES Syndrome Community
Supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.
Exceptional Parent Magazine
A magazine for parents of children with special needs.
Hereditary Hemorrhagic Telangiectasia (HHT) Foundation
HHT provides advocacy and support. Includes factual information, research updates, helpful links, and a newsletter.
Klippel-Trenaunay (KT) Support Group
Vascular Malformation advocacy and support. Includes factual information and resources.