Stories to inspire

Patient story

Life with Celiac Disease: Anna’s Story

Teen with celiac disease pens personal guide to gluten-free living for other newly diagnosed youth.

Patient story

Creating access to world-class orthopedic specialists for kids like Jackie

At 18 months old, Jackie needed hip surgery. CHOP’s new hospital will give families like hers easier access to CHOP’s world-class orthopedic experts.

Patient story

Sophia’s Story: Fetal Surgery to Remove a Sacrococcygeal Teratoma

Before she was born, Sophia underwent successful surgery at Children's Hospital of Philadelphia to remove a tumor called a sacrococcygeal teratoma from her tailbone. See how she's doing now.

Patient story

From Sudden Cardiac Arrest to AED Advocate: Maddie’s Story

When 17-year-old Maddie collapsed on the school athletic field, a quick-thinking staff member saved her life with an AED. Now she’s determined to save others.

Patient story

Maxwell’s Story: Postnatal Repair and Care for Congenital Diaphragmatic Hernia

Chris and Jolin traveled from their home in Pensacola, Florida to Children’s Hospital of Philadelphia to give their son, Max, access to world-class CDH care.

Patient story

Thomas’s Story: Prenatal Diagnosis and Postnatal Surgical Repair of Encephalocele

One family shares their experience for parents who learn their child has a severe diagnosis before birth

Patient story

New Genetic Condition Identified: Luke’s Story

Luke’s repeated infections worried his parents and puzzled his doctors. Whole-exome sequencing helped CHOP researchers discover a new genetic disease causing his symptoms and determine the best course of treatment.

Patient story

Leigh Syndrome: A Family’s Quest for Answers

When CHOP discovered the genetic mutation that caused two boys’ early deaths, their family donated $2 million to CHOP to propel mitochondrial disease research even further.

Patient story

Duchenne Muscular Dystrophy: Cooper’s Story

Cooper was one of the first at CHOP to receive a new FDA-approved infusion therapy for Duchenne muscular dystrophy, which is given to him at home. Results are promising.

Patient story

A Game-Changer for When a Fever Can Be Life-Threatening

Whenever a cancer patient like Max gets a fever, it’s an emergency. CHOP’s new hospital in King of Prussia will mean a closer ER for these frightening moments.

Foundation Stories

Stories to inspire