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Foundation Stories

Stories to inspire

Patient story

Scoliosis: Kate & Emma's Story

Sisters Kate and Emma Fair were diagnosed with a rapidly advancing scoliosis, but their family found treatment, support, and a path toward recovery close to home.

Patient story

Coffin-Siris Syndrome: Julia’s Story

After four years of uncertainty, the Roberts Individualized Medical Genetics Center helped the Steigerwalt family find a diagnosis behind their daughter’s complex medical condition.

Patient story

Sofia-Rose’s Spina Bifida Fetal Surgery Story

When Alicia and Matthew learned their unborn baby had spina bifida, the prognosis was grim. But the team at CHOP offered them hope through fetal surgery. See how she's doing 3 years later.

Patient story

Sickle Cell Disease: Caylin’s Story

Now 12, Caylin’s regular visits to CHOP for sickle cell disease treatment have inspired her love for comparing numbers, gathering data and experimenting.

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