Stories to inspire
Never-Before-Seen Disease: Elijah’s story
In unlocking the key to Elijah’s mystery illness, CHOP doctors identified a new autoimmune disease and developed a customized plan to treat his disorder.
Hudson’s Story: Pull-through Procedure for Hirschsprung’s Disease
After a healthy start, Hudson hit an obstacle when diagnosed with Hirschsprung’s disease. With surgery and bowel management strategies, he’s doing well.
Brandon’s Story: Limb Amputation after a Traumatic Injury
Despite efforts to save his toes, Brandon required an amputation. With help from experts at CHOP, he’s back playing his favorite sports.
Type 1 Diabetes: Jaaron’s Story
A CHOP community health worker is helping Jaaron and his family better manage his type 1 diabetes by offering support like accompanying them to appointments and connecting them to nearby resources.
Relapsed Rhabdomyosarcoma: Ella’s Story
Eager to talk, question and explain, Ella, 7, has an engaging personality. After a cancerous mass was found in Ella’s abdomen, and then another in her lungs, she’s on a treatment plan that isn’t getting in the way of her being a happy, active kid.
Gene Therapy for Inherited Blindness: Hannah’s Leber Congenital Amaurosis Story
Diagnosed with Leber congenital amaurosis as a baby, Hannah was on a path to going blind until gene therapy at Children’s Hospital restored her sight.
Leukemia and Massage Therapy: Johanna’s Story
Johanna, used integrative health techniques including massage therapy to relax during treatment for leukemia. Today, she’s in remission.
Kallmann Syndrome: Jill’s Story
When traditional tests were inconclusive, Jill turned to the Roberts Individualized Medical Genetics Center for a diagnosis of Kallmann syndrome.
Turner Syndrome: Violet's Story
Violet was diagnosed with Turner syndrome in utero and was given a 1 percent chance of surviving to term. Now 3, she is an active and happy toddler.
Lymphatic Leaks: Georgia's Story
After a serious accident in Montana, Georgia, 10, was sent to Children's Hospital of Philadelphia for a life-saving lymphatic procedure.