Stories to inspire

Idiopathic Scoliosis and Posterior Spine Fusion: Lily’s story
Alabama girl comes to CHOP for spine surgery that straightens her spine and allows her to continue competitive dance.

VACTERL Association: Olivia’s Story
Diagnosed with VACTERL Association, Olivia found improved care and treatment at CHOP’s Suzi and Scott Lustgarten Center for GI Motility.

PICU Experience at the Middleman Family Pavilion: Louie’s Story
After a recent surgery to repair a fractured leg, Louie was transferred to the Middleman Family Pavilion in King of Prussia to recover, which is much closer to the family’s home.

A Dream Fulfilled: From Surgery as a Newborn to a Nurse in the ICU
Abby underwent surgery to remove a lung lesion at CHOP in her first few days of life and is now, 26 years later, a nurse in the Hospital’s ICU.

Double Lung Transplant: Marcellius’s Story
As a toddler with lung disease, Marcellius was given five years to live. A double lung transplant at CHOP saved him, and he’s now a young adult.

Eosinophilic Esophagitis: Princess’ story
Princess has struggled for years with a rare inflammatory condition of the esophagus. Thanks to CHOP, a new medication and family support, she’s now thriving.

Omphalocele Discovered During Pregnancy: Grace’s Story
At CHOP, when pediatric surgeons perform postnatal repair of omphalocele, a child’s health and quality of life are both top of mind.

New Onset Nephrotic Syndrome: Nolan’s Story
3 year old Nolan’s leg pain and swelling of his eyes and stomach led to a diagnosis of nephrotic syndrome, now managed by immunosuppression.

Lung Transplant: Leah’s Story
Born with a rare lung disorder, Leah is one of the youngest patients to go from a heart-lung bypass machine to successful lung transplant.

The Beauty of Different: Sasha’s Story
From gracing a magazine cover to writing for one, this former Fetal Heart Program patient aims to shake up the beauty industry and its view of scars.
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